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1.
Int J Qual Stud Health Well-being ; 19(1): 2288100, 2024 Dec.
Artigo em Inglês | MEDLINE | ID: mdl-38055791

RESUMO

BACKGROUND: The global COVID-19 pandemic has shown the vulnerability of some population groups, including persons with intellectual and developmental disabilities (IDD). AIM: The present paper will provide more clarity and understanding of the experiences of family members of persons with IDD housed in residential facilities in Catalonia within the period of maximum restrictions during the COVID-19 pandemic. METHODS AND PROCEDURES: Semi-structured interviews were conducted using an interpretive phenomenological qualitative approach. Study participants consisted of 14 relatives of IDD individuals who were institutionalized in residence facilities or homes. The guiding questions emerged from group discussions with relatives of those with IDD who did not participate in the subsequent interviews. Drawing from this group, the factors that were identified to have had the greatest impact on their lives were later used to guide the interviews. Data collection was carried out in face-to-face individual interviews that were recorded together with the observations of two researchers between February and October 2022. RESULTS: Our analysis identified 4 main themes that developed into additional factors: the decision to stay at home or in the residence, fear, illness, and protocol. Individuals with IDD lost their daily routines, suffered from social isolation, and did not understand the situation. CONCLUSION: The results of this study allow for a better understanding of the experiences of families of persons with IDD in residential centres during the lockdown by identifying their needs and how to better support them in the future. OUTCOMES AND RESULTS: Knowledge and understanding of these events should allow for better management of similar situations in the future.


This study contributes to a growing body of research that examines the experiences of IDD individuals and their families during the early months of the COVID-19 pandemic. A qualitative phenomenological interpretative approach was used following the recommendations of qualitative research practices in health care. Our findings reveal that relatives of persons with IDD who lived in residential care homes felt that the residents were not adequately cared for by the staff, who applied measures for containment and contagion prevention that were disproportionate, resulting in their needs not being considered; these recommended measures had been developed for elderly care homes. Individuals with IDD lost their daily routines, suffered from social isolation, and did not understand the situation. The present findings show that residential care homes for persons with IDD require specific action protocols in crisis situations that are adapted to the needs and characteristics of each centre,thus adopting a model of care based on human rights.


Assuntos
COVID-19 , Deficiência Intelectual , Pessoas com Deficiência Mental , Criança , Humanos , Controle de Doenças Transmissíveis , COVID-19/epidemiologia , Deficiências do Desenvolvimento/epidemiologia , Família , Pandemias , Instituições Residenciais
2.
Georgian Med News ; (343): 23-27, 2023 Oct.
Artigo em Inglês | MEDLINE | ID: mdl-38096510

RESUMO

Aim - to study functional organization of hemodynamic processes in brain basins of healthy children and children with mild mental retardation depending on the nature of asymmetry and gradient of cerebral blood filling are investigated. The research executed in the scientific laboratory of the special and inclusive education department of the Armenian State Pedagogical University after Kh. Abovyan and Armenian State Institute of Physical Culture and Sport. The study involved children aged 8 to 11 years, a total of 131. 73 of them are healthy schoolchildren and 58 children with a low degree of mental retardation. Each category of subjects was divided into 2 age groups: 8-9 years and 10-11 years. The results of the experimental study of task performance show that interesting data have been obtained which will serve as a basis for the development of necessary means, methods, and conditions for the development of elementary practical orientation in mentally retarded elementary school children. The analysis of the results of the study allows us to highlight the following important points: in the control group, 88% of the examined patients showed a hyperfrontal pattern in terms of RI (rheogramm amplitude). In seven children, the hypermastoidal pattern was observed, and in the two children of the control group, no significant differences between the RI values in the frontal and mastoidal basins were found. The study involved 131 children aged 8 to 11 years old. 73 of them were healthy with normal physical and mental development as well as 58 children with a weak degree of mental retardation. The study was undertaken to determine which sport and physical activity allowed children with mental retardation. Established that the parameter of TPWV in 8-9-year-old and 10-11-year-old schoolchildren of the control group was significantly higher than that of experimental children in the frontal, bimostoidal and hemispheric basins.


Assuntos
Deficiência Intelectual , Pessoas com Deficiência Mental , Criança , Humanos , Análise e Desempenho de Tarefas , Circulação Cerebrovascular
3.
Sci Rep ; 13(1): 14498, 2023 09 04.
Artigo em Inglês | MEDLINE | ID: mdl-37666932

RESUMO

To compare the anterior segment indices between mentally retarded and normal children. The current study was conducted as a cohort. In this study, 73 mentally retarded and 76 normal children were selected from normal school and special schools for mentally retarded children using random cluster sampling method. Mental retardation in children was confirmed by a psychologist. Optometry examinations including visual acuity and refraction were performed for all participants, and ultimately, corneal imaging measurements were taken by Pentacam. The mean age of mentally retarded and normal children was of 13.30 ± 1.83 and 13.05 ± 1.82 years, respectively (P = 0.180). A multiple generalized estimating equations model demonstrated that there is a significant association between central corneal thickness (CCT) (coef = 1.011, P < 0.001), corneal diameter (CD) (coef = 0.444, P = 0.046), anterior chamber depth (ACD) (coef = 0.23), P < 0.001) and index of vertical asymmetry (IVA) (coef = 0.12, P < 0.001) and mental retardation. Cerebral palsy children had higher keratoconus index (KI), central keratoconus index (CKI), index of height asymmetry(IHA), and index of height decentration (IHD) compared to those without cerebral palsy (P < 0.05). Children with moderate mental retardation had higher index of surface variance (ISV), IVA, IHA, and IHD than those with mild mental retardation (P < 0.05). The mean and standard deviation of CCT, CD, ACD and IVA index in mentally retarded children were 535.3 ± 46.68 micron, 11.87 ± 0.42 mm, 3.29 ± 0.24 mm and 0.25 ± 0.18 mm, respectively. These indices in the normal group were 525.53 ± 47.52 micron, 11.84 ± 0.38 mm, 3.15 ± 0.28 mm and 0.17 ± 0.05 mm, respectively. The findings of this study showed that some anterior segment indices were different in mentally retarded compared to normal children. Moreover, some keratoconus indicators were worse in cerebral palsy children and children with higher grade mental retardation. So, it is important to consider keratoconus screening in these children.


Assuntos
Paralisia Cerebral , Deficiência Intelectual , Ceratocone , Pessoas com Deficiência Mental , Humanos , Criança , Adolescente , Paralisia Cerebral/diagnóstico , Exame Físico
4.
PLoS One ; 18(9): e0291869, 2023.
Artigo em Inglês | MEDLINE | ID: mdl-37733732

RESUMO

OBJECTIVE: To review the evidence of supported employment interventions in low-to-middle income countries, documents their impact for persons with mental disorders in the open labour market and well as support decision making for its wider implementation in the workplace. DESIGN: The scoping review is conducted following guidelines in the Arksey and O'Malley (2005) Framework. DATA SOURCES AND ELIGIBILITY: Eleven databases which are PubMed, Scopus, Academic Search Premier, the Cumulative Index to Nursing and Allied Health Literature, Africa-Wide Information, Humanities International Complete, Web of Science, PsychInfo, SocINDEX, Open Grey and Sabinet were searched for articles published between January 2006 and January 2022. Both peer-reviewed articles and grey literature were eligible if they were on supported employment interventions in low-to-middle income countries. Only articles published in English were included. STUDY APPRAISAL AND SYNTHESIS: Articles were screened at title, abstract and full article levels by two independent teams with the use of Rayyan software. Deductive thematic analysis was used to synthesize evidence on the supported employment interventions implemented in LMICs, capturing evidence of their outcomes for persons with mental disabilities securing competitive work. RESULTS: The search yielded 7347 records and after screening by title and abstract, 188 studies were eligible for full article screening. Eight studies were included in this scoping review. Thematic descriptions of the findings were based on the availability of supported employment interventions within the context, the type of supported employment interventions as well as mental health and vocational outcomes in the workplace. CONCLUSIONS: There is limited evidence of supported employment interventions in low-to-middle income countries despite the promising potential it has as an intervention to address mental health problems in the workplace and facilitate work participation by persons with mental disabilities.


Assuntos
Readaptação ao Emprego , Deficiência Intelectual , Pessoas com Deficiência Mental , Humanos , Países em Desenvolvimento , Saúde Mental , Local de Trabalho
5.
Orv Hetil ; 164(37): 1456-1461, 2023 Sep 17.
Artigo em Húngaro | MEDLINE | ID: mdl-37717238

RESUMO

INTRODUCTION: In Hungary, dental care and prevention for mentally disabled individuals are becoming increasingly challenging. Currently, there are 100,000 intellectually disabled individuals in the country who require "special medical care". OBJECTIVE: The objective of this study was to develop and modify a relatively simple preventive procedure, adjusted to the mental capabilities of the patients, and implement it within a selected group. The study aimed to assess the results after 3 and 6 months, respectively, and to compare them with the international literature. METHOD: The preventive procedure was introduced to 49 patients admitted to the institute of Csömör Nursing Home and Daycare Institute of the Foundation for Equal Opportunities. To ensure the accuracy of the data, the patients were examined separately by 3 doctors. The program began with dental care training for both patients and nursing staff. The periodontal examinations were carried out by the team's periodontologist. The patients were checked after 3 and 6 months, respectively, and the data were recorded. RESULTS: No changes were registered in terms of the DMF-T index during this short period of time, therefore we applied the restorative index. However, a significant improvement was observed in the periodontal condition. DISCUSSION: The preventive procedure proved to be effective, considering the fact that all patients had periodontal problems due to neglected oral hygiene. As there was a significant improvement in the periodontal condition, an improvement of the DMF-T index dentition of the patients can also be expected in the future. CONCLUSION: Enhanced oral hygiene (advancing towards "normal oral hygiene" from the neglected oral hygiene of the patients) can bring about considerable improvement in the case of patients needing special medical care. To attain positive results, a proper approach and regular motivation are essential for both patients and caregivers. Orv Hetil. 2023; 164(37): 1456-1461.


Assuntos
Pessoas com Deficiência , Doenças Periodontais , Pessoas com Deficiência Mental , Humanos , Academias e Institutos , Hospitalização , Assistência Odontológica
6.
Siglo cero (Madr.) ; 54(3): 11-33, jul.-sep. 2023. ilus, tab
Artigo em Inglês | IBECS | ID: ibc-226487

RESUMO

There is a lack of psychometrically validated tools to evaluate the extent to which people with intellectual disability (ID) truly exercise their rights in all areas of their lives. The aim of this article is to provide evidence about the usefulness and reliability of the pilot version of the #Rights4MeToo Scale, an instrument based on the Quality of Life Supports Model. The scale can be self-reported by people with ID or hetero-reported by family members or professionals. First, through a qualitative study with self-advocates with ID, we provide evidence about the need and usefulness of this tool to understand and monitor compliance with the Convention on Rights of Persons with Disabilities (CRPD). Next, we present preliminary data on the internal consistency of the items that make up the pilot version, analyzing the responses of 1,200 people with ID, family members, and professionals. The #Rights4MeToo Scale will make it possible to conduct national studies on compliance with the CRPD, not to mention international comparative studies when the scale is adapted to the legal and cultural context of other countries. (AU)


Resulta urgente e ineludible contar con herramientas, con adecuadas evidencias de validez y fiabilidad, que permitan evaluar hasta qué punto las personas con discapacidad intelectual (DI) verdaderamente ejercen sus derechos en todos los ámbitos de su vida. El objetivo de este artículo consiste en proporcionar evidencias acerca de la utilidad y la fiabilidad de la versión preliminar de la escala #YoTambién Tengo Derechos, un instrumento diseñado a partir del Modelo de Calidad de Vida y Apoyos. La escala puede ser autoinformada por personas con DI o heteroinformada por familiares o profesionales. Por un lado, mediante un estudio cualitativo con autogestores con DI se proporcionan evidencias acerca de la necesidad y la utilidad de esta herramienta para conocer y monitorizar el cumplimiento de la Convención. Por otro lado, presentamos datos preliminares de la consistencia interna de los ítems, analizando las respuestas de 1.200 personas con DI, familiares y profesionales. La escala #YoTambién Tengo Derechos permitirá llevar a cabo estudios nacionales sobre el cumplimiento de la Convención sobre los Derechos de las Personas con Discapacidad y, con su adaptación al contexto legal y cultural de otros países, estudios comparativos internacionales. (AU)


Assuntos
Humanos , Masculino , Feminino , Adulto , Pessoa de Meia-Idade , Pessoas com Deficiência Mental/legislação & jurisprudência , Defesa das Pessoas com Deficiência , Deficiência Intelectual , Qualidade de Vida , Reprodutibilidade dos Testes
8.
Rev. bioét. derecho ; (58): 165-185, Jul. 2023.
Artigo em Espanhol | IBECS | ID: ibc-222834

RESUMO

La representación social facilita la construcción de un modelo explicativo que permite comprender el contexto y los significados en torno a fenómenos, tales como la discriminación y estigma sobre aquellas personas que están limitadas de ejercer sus derechos y deberes de manera plena e igualitaria, como es el caso de las personas con discapacidad psicosocial. Este trabajo contribuye a la reflexión desde una perspectiva bioética, por lo que aborda aspectos teóricos de la representación social de personas con discapacidad psicosocial en el contexto de salud y desde el déficit de ciudadanía que limita la participación efectiva de estas personas en la sociedad. Se puede decir que las representaciones sociales que se tiene el personal sanitario de las personas con discapacidad psicosocial han sido influenciadas por corrientes teóricas del paradigma médico rehabilitador. Esto determina el predominio de intervenciones paternalistas, ya que se les considera población vulnerable en sentido negativo. Junto con esto, se asocia a una carga estigmática hacia personas con trastornos de salud mental, característico del modelo médico. Al respecto, es posible considerar acciones que prevengan la discriminación de este grupo en el contexto sanitario, con el fin de abandonar la noción “capacitista” de la discapacidad en la práctica clínica y equilibrar los riesgos y beneficios en torno a una visión que privilegie la autonomía, Además, de tomar acciones dirigidas hacia la ciudadanía que promuevan el reconocimiento de la diversidad de las sociedades democráticas.(AU)


La representació social facilita la construcció d'un model explicatiu que permet comprendre el context i els significats entorn de fenòmens, tal com la discriminació i estigma sobre aquellespersones que estan limitades d'exercir els seus drets i deures de manera plena i igualitària, com és el cas de les persones amb discapacitat psicosocial. Aquest treball contribueix a la reflexió des d'una perspectiva bioètica, per abordar els aspectes teòrics de la representació social de persones amb discapacitat psicosocial en el context de salut i des del dèficit de ciutadania que limita la participació efectiva d'aquestes persones a la societat. Es pot dir que les representacions socials que té el personal sanitari de les persones amb discapacitat psicosocial han estat influenciades per corrents teòrics del paradigma mèdic rehabilitador. Això determina el predomini d'intervencions paternalistes, ja que es considera la població vulnerable en sentit negatiu. Junt amb això, s'associa a una càrrega estigmàtica cap a persones amb trastorns de salut mental, característic del model mèdic. Al respecte, és possible considerar accions que previnguin la discriminació d'aquest grup en el context sanitari, amb el fi d'abandonar la noció “capacitista” de la discapacitat en la pràctica clínica i equilibrar els riscos i beneficis respecte a una visió que privilegia l'autonomia, A més, de prendre accions dirigides cap a la ciutadania que promouen el reconeixement de la diversitat de les societats democràtiques.(AU)


Social representation facilitates the construction of an explanatory model that allows understanding the context and meanings surrounding phenomena such as discrimination and stigma on those people who are limited from exercising their rights and duties in a full and equal manner, as is the case of people with psychosocial disabilities. This work contributes to the reflection from a bioethical perspective, so it addresses theoretical aspects of the social representation of people with psychosocial disabilities in the context of health and from the citizenship deficit that limits the effective participation of these people in society. It can be said that the social representations held by health personnel of people with psychosocial disabilities have been influenced by theoretical currents of therehabilitative medical paradigm. This determines the predominance of paternalistic interventions, since they are considered a vulnerable population in a negative sense. Together with this, it is associated with a stigmatic burden towards people with mental health disorders, characteristic of the medical model. In this regard, it is possible to consider actions to prevent discrimination of this group in the health context, in order to abandon the "enabling" notion of disability in clinical practice and balance the risks and benefits around a vision that privileges autonomy, in addition to taking actions aimed at citizenship that promote recognition of the diversity of democratic societies.(AU)


Assuntos
Humanos , Temas Bioéticos , Pessoas com Deficiência Mental , Deficiência Intelectual , Participação da Comunidade , Bioética , Direitos Humanos , Serviços de Saúde Mental
9.
Int J Oral Maxillofac Implants ; 38(3): 562-568, 2023.
Artigo em Inglês | MEDLINE | ID: mdl-37279230

RESUMO

PURPOSE: To verify the survival rates and marginal bone loss (MBL) of implants in patients with different disability types. MATERIALS AND METHODS: Clinical and radiographic assessments were performed in a total of 189 implants for fixed implant prostheses in 72 patients. Data were collected on loaded implants at least 1 year in function, and the mean observation time was 37.3 months. Implant survival was examined, and MBL was observed around the implants of two groups (mental disability vs physical disability) based on age, sex, implant location (anterior vs posterior), and prosthetic connection (internal vs external). RESULTS: Of the 189 implants, 4 failed; the total implant survival rate was 97.8% across a mean of 37.3 months. The cumulative survival rate at 85 months in a Kaplan-Meier survival curve analysis was 94.3% ± 3% in patients with mental disability and 50% ± 35.4% in patients with physical disability, which was a statistically significant difference between the disability groups (P = .006). Fisher exact test showed significant differences in MBL only with age (P < .001). The implant MBL by disability type-adjusted for age and observation period-showed significant differences in multiple linear regression analyses (P = .003). CONCLUSION: The implant survival rates in patients with disability were in line with those reported for nondisabled patients. The MBL of the implants was within the physiologic bone loss after implant loading. Implants in patients with mental disability showed higher cumulative survival rates than in patients with physical disability, but also a higher amount of MBL. Within the limitations of this study, dental implants for patients with disability are viable. These results can establish future implant treatment plans for this population. Int J Oral Maxillofac Implants 2023;38:562-568. doi: 10.11607/jomi.9880.


Assuntos
Perda do Osso Alveolar , Implantes Dentários , Pessoas com Deficiência , Humanos , Perda do Osso Alveolar/diagnóstico por imagem , Taxa de Sobrevida , Pessoas com Deficiência Mental , República da Coreia , Falha de Prótese , Masculino , Feminino , Adulto
10.
J Appl Res Intellect Disabil ; 36(5): 966-977, 2023 Sep.
Artigo em Inglês | MEDLINE | ID: mdl-37339925

RESUMO

BACKGROUND: Caring for persons with profound intellectual and multiple disabilities (PIMD) demands specific expertise. Tacit knowledge seems to play an important role, but little is known about its nature, including what is necessary for its development and transfer. AIM: To gain understanding of the nature and development of tacit knowledge between persons with PIMD and their caregivers. METHOD: We conducted an interpretative synthesis of literature on tacit knowledge in caregiving dyads with persons with PIMD, persons with dementia or infants. Twelve studies were included. RESULTS: Tacit knowledge is about caregivers and care-recipients becoming sensitive and responsive to each other's cues and together crafting care routines. Learning takes place in a constant process of action and response that transforms those involved. CONCLUSION: Building tacit knowledge together is necessary for persons with PIMD to learn to recognise and express their needs. Suggestions are made for ways to facilitate its development and transfer.


Assuntos
Pessoas com Deficiência , Deficiência Intelectual , Pessoas com Deficiência Mental , Humanos , Cuidadores
11.
Arch Dermatol Res ; 315(6): 1827-1829, 2023 Aug.
Artigo em Inglês | MEDLINE | ID: mdl-36745196

RESUMO

Hidradenitis suppurativa (HS) is a chronic, debilitating skin condition that is characterized by painful pustules, nodules, abscesses, and sinus tracts. The complicated and fast-evolving treatment of HS consists of a multi-tiered approach that includes, antibacterial, antihormonal, anti-inflammatory, and surgical options. Studies have demonstrated an earlier age of onset and increased prevalence of HS in patients with intellectual and developmental disability (IDD) compared to patients without IDD. To explore the use of an intensive multi-tiered HS management algorithm that requires monthly office visits, monthly intravenous therapy, and several daily treatment modalities in an HS population with IDD, we conducted an IRB-approved retrospective chart review of HS patients treated at the Albert Einstein College of Medicine-Montefiore HS Center (HSC) with diagnoses of concurrent IDD to investigate their demographic and diagnostic characteristics, as well as the spectrum of therapies employed in this cohort. A total of 22 HS patients with concomitant IDD, including trisomy 21, unspecified intellectual disability, autism spectrum disorder, and trisomy 13 were identified. Therapies utilized in this cohort for HS included topical and oral antibiotics, spironolactone, finasteride, oral contraceptive pills, infliximab, adalimumab, isotretinoin, intralesional and intramuscular triamcinolone injections, and excisional surgery. In conclusion, our findings indicate that despite the practical challenges, daily oral antibiotic regimens, anti-androgen combinations, oral retinoids, infliximab, adalimumab, and surgery collectively play important roles in treating HS patients with IDD. Our cases underscore the importance of utilizing the full range of modalities as the HS treatment algorithm continues to evolve.


Assuntos
Hidradenite Supurativa , Pessoas com Deficiência Mental , Humanos , Hidradenite Supurativa/tratamento farmacológico , Hidradenite Supurativa/epidemiologia , Hidradenite Supurativa/cirurgia , Estudos Retrospectivos , Antibacterianos/uso terapêutico , Infliximab/uso terapêutico , Triancinolona/uso terapêutico , Anticoncepcionais Orais/uso terapêutico , Masculino , Feminino , Criança , Adolescente , Adulto , Pessoa de Meia-Idade
14.
Work ; 75(2): 711-727, 2023.
Artigo em Inglês | MEDLINE | ID: mdl-36641725

RESUMO

BACKGROUND: Among people with mental disabilities in Japan, 50.7% have left employment within a year despite the provision of employment support. Their subjective perceptions are likely relevant, as many causes for leaving employment are personal. However, thus far, employment continuity assessment has been based on objective indicators, while subjective evaluation remains underdeveloped. OBJECTIVE: We conducted a mixed-methods study to identify the subjective characteristics that impact the ability of persons with mental disabilities to continue working while receiving employment support. METHODS: In total, 41 participants with mental disabilities in continuous employment were included in the study, and data were collected using a demographic and employment status questionnaire and the Worker's Role Interview. Further, to clarify the constructs related to subjective perceptions of work continuity, the step for coding and theorization (SCAT) method was utilized. RESULTS: The results revealed five overarching superordinate concepts and 12 subordinate concepts of subjective perceptions regarding maintaining the current work and the future for participants who continue to work. These perceptions may be related to the participants' experience and the time course of work continuity. Subjective perceptions of difficulty levels were found to be the most and the least difficult for a reasonable accommodation without specific rules and awareness of the effects of work concepts, respectively. CONCLUSION: This research could facilitate the development of an employment support system based on people with mental disabilities' subjective needs, thus contributing to their continued employment.


Assuntos
Pessoas com Deficiência , Pessoas com Deficiência Mental , Humanos , Japão , Emprego , Inquéritos e Questionários
15.
Med Law Rev ; 31(2): 205-225, 2023 May 25.
Artigo em Inglês | MEDLINE | ID: mdl-36166703

RESUMO

How can caregivers' interests be balanced with disability rights in decisions about whether to sterilise an intellectually disabled person? This question is considered in the context of Singapore, a commonwealth country that lacks a test case. Singapore has a lesser-known history of eugenics, and has struck an uneasy compromise between communitarian values and obligations under the United Nations Convention on the Rights of Persons with Disabilities (CRPD) in recent years. This article provides an overview of Singaporean law under the Voluntary Sterilisation Act 1974 and the Mental Capacity Act 2008, and compares this with the law in Canada, England and Wales, and Australia. This article also situates the CRPD in the context of Singapore's dualist view of international law and communitarian approach to disability policy. It argues that CRPD rights to bodily integrity can be presumptively upheld in best interests determinations on sterilisation, while caregivers' interests can be accommodated in a relational understanding of best interests. A decisional framework along these lines is proposed.


Assuntos
Pessoas com Deficiência , Pessoas com Deficiência Mental , Humanos , Direitos Humanos , Esterilização Reprodutiva , Cuidadores , Nações Unidas
16.
Am J Law Med ; 49(2-3): 234-249, 2023 Jul.
Artigo em Inglês | MEDLINE | ID: mdl-38344796

RESUMO

When federal district court Judge Carlton Reeves penned his opinion in U.S. v. Mississippi,1 the case that seemed poised to overhaul Mississippi's suffering mental health system, he began with the story of Ms. Melanie Worsham, a mental health patient, also a certified peer support specialist. Ms. Worsham works to help those like herself who suffer with lifelong serious mental illness (SMI) to "overcome the obstacles that might be getting in their way of living the life they want to live." She also assists those with SMI by aiding in "navigating the system, to find resources, and then just being moral support."2.


Assuntos
Pessoas com Deficiência Mental , Humanos , Mississippi , Estados Unidos , Pessoas com Deficiência Mental/legislação & jurisprudência , Decisões da Suprema Corte
17.
J Appl Res Intellect Disabil ; 35(6): 1380-1389, 2022 Nov.
Artigo em Inglês | MEDLINE | ID: mdl-36207144

RESUMO

BACKGROUND: Parents with intellectual disability are vulnerable to parenting stress and overwhelming life events. The COVID-19 pandemic constitutes a potentially overwhelming event, but there is little knowledge concerning the effects on parents' caregiving. The present study aimed to fill this gap. METHOD: Semi-structured interviews with 10 Swedish parents with intellectual disability were analysed using thematic analysis. RESULTS: One broad caregiving-related theme: increased caregiving demands and reduced resources for coping resulting in strained parent-child interactions and relationships. Four subthemes highlighted influential factors: pandemic information, professional support, social relationships and informal support, and children's school activities. Strained parent-child interactions were particularly common in the absence of adapted pandemic information, if professional and informal support were compromised, and if the parents had dealt with school-related changes. CONCLUSIONS: Findings support contextual models of caregiving and a stress-resources perspective, and emphasise the importance of adapted information and support to parents with intellectual disability during crises.


Assuntos
COVID-19 , Deficiência Intelectual , Pais , COVID-19/epidemiologia , Educação Infantil , Pré-Escolar , Humanos , Pandemias , Poder Familiar , Pessoas com Deficiência Mental
18.
Artigo em Inglês | MEDLINE | ID: mdl-36293977

RESUMO

(1) Background: Indoor climbing has different effects at various levels, including physical, psychological, and social ones. It is of high interest to assess whether social skills developed through climbing can be transferred to another environment, such as the working environment. This study investigates the effects of indoor climbing on employability and occupational self-efficacy of people with intellectual disability, who possess lower levels of social competences in general. (2) Methods: A randomised controlled study (RCT) experimental study design with three groups was formed-one intervention (IG) and two control groups (CGI&II). For 10 months, the IG went climbing (two times per week), whereas the first CG followed a sports programme and the second CG served as controls. (3) Results: IG participants showed significant improvement in mental and somatic health over time. Regarding occupational self-efficacy, females had a significantly lower mean. Nevertheless, only the IG's female participants mean increased significantly over time. (4) Conclusions: Indoor climbing can be effective for improving occupational health and can be beneficial for specific groups; however, additional research is needed to further specify the influence of indoor climbing on a wider variety of aspects of the life of people with intellectual disability.


Assuntos
Deficiência Intelectual , Pessoas com Deficiência Mental , Esportes , Feminino , Humanos , Autoeficácia , Projetos de Pesquisa
19.
J Am Acad Psychiatry Law ; 50(4): 577-589, 2022 12.
Artigo em Inglês | MEDLINE | ID: mdl-36162861

RESUMO

Persons with intellectual disability charged with sexual crimes (PWID/SC) pose a unique challenge for the forensic psychiatrist. They represent a heterogeneous group whose motivations and pathology range from a simple lack of adaptive functioning to more complex comorbid paraphilic disorders. Although there is a growing body of literature on the risk assessment and treatment of PWID/SC, there is a relative lack of guidance and research on the evaluation of these individuals throughout the legal processes that follow being charged with a sexual crime. To address this deficit, this article reviews the literature germane to several key aspects of this process. We first review the current understanding of intellectual disability and sexual pathology. We identify landmark legal decisions that may relate to PWID/SC. We then review the literature related to PWID/SC and competency assessments, defenses involving mental disease or impairment, sexually violent predator evaluations and court-mandated pharmacotherapy. We aim to both bring attention to this unique forensic population and highlight areas for further research and exploration.


Assuntos
Deficiência Intelectual , Transtornos Mentais , Pessoas com Deficiência Mental , Delitos Sexuais , Abuso de Substâncias por Via Intravenosa , Humanos , Comportamento Sexual , Psiquiatria Legal
20.
Inf. psiquiátr ; (248): 135-138, jul.-sept. 2022. ilus
Artigo em Espanhol | IBECS | ID: ibc-213430

RESUMO

Desde la óptica de la atención centrada en la persona, la normalización y de la integración como principios básicos desde los que se plantea la atención y el apoyo a las personas con discapacidad intelectual es necesario trabajar el tema de la sexualidad y relaciones interpersonales, como un elemento básico de los derechos de las personas. Por este motivo en las jornadas realizadas se ha impartido un taller de sexualidad en las personas con discapacidad basándonos en la Guía de los criterios orientativos para el abordaje de las conductas afectivo-sexuales de las personas con discapacidad intelectual, de la Fundación Purísima Concepción, con el objetivo de conocer la herramienta, hacer una experiencia práctica de su uso y generar una reflexión conjunta entre los profesionales de la institución (AU)


From the perspective of person-centered care, normalization and integration as basic principles from which care and support for people with intellectual disabilities are proposed, it is necessary to work on the issue of sexuality and interpersonal relationships, as a basic element of human rights. For this reason, in the sessions held, a workshop on sexuality was given to people with disabilities based on the Guide of the indicative criteria for addressing the affective-sexual behaviors of people with intellectual disabilities, of the Purísima Concepción Foundation, with the objective of knowing the tool, making a practical experience of its use and generating a joint reflection among the professionals of the institution


Assuntos
Humanos , Serviços de Saúde para Pessoas com Deficiência , Pessoas com Deficiência Mental , Sexualidade
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